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Monday, 18 May 2015

Day 30 of the 30 day blog challenge

Day 30 of the 30 day blog challenge


A photo of myself and 3 good things that have happened in the last 30 days.. 


1. The amazing gift from my mum, the space in our garden she created especially for me

2. Time spent with my family and boyfriend 

3. Getting the date for my chair! 

Love and light Rosie xx

Day 29 of the 30 day blog challenge

Day 29 of the 30 day blog challenge


Something I could never get tired of doing..


Spending time with my dogs!! Love them so much and they love me back with no questions 




Love and light Rosie xx

Day 28 of the 30 day blog challenge

Day 28 of the 30 day blog challenge


My favourite movie..


50 first dates is my all time favourite! 


Love and light Rosie xx

Day 27 of the 30 day blog challenge

Day 27 of the 30 day blog challenge


Put your iPod on shuffle and listen to the first ten songs.. 














Love and light 

Rosie xx

Day 26 of the 30 day blog challenge

Day 26 of the 30 day blog challenge


How I was this time 5 years ago& have I changed?


I think I'm still the same old happy smiley funny me.. A little older, weaker but still me and still ready to tackle this fight with all I am.


Love and light 

Rosie xx

Day 25 of the 30 day blog challenge

Day 25 of the 30 day blog challenge



Something that I miss.. 


The simplest thing.. Having good health. 


Love and light 

Rosie xx

Day 24 of the 30 day blog challenge

Day 24 of the 30 day blog challenge


What's in my handbag? 


Well normally a lot of crap!! 


This is my bag, a cute small river island one currently.. 


In there I have a purse which again is currently a river island one..

And then inside my bag I have ..
2 MAC lipsticks
A Chapstick
A little tub of Vaseline 
A small mirror
Lush Tuca Tuca perfume stick
4head stick 
A fan
Tissues
A pen& a pencil
Passport
Sunglasses
And medical tape for my tubes 


Love and light 

Rosie xx

Day 23 of the 30 day blog challenge

Day 23 of the 30 day blog challenge 


20 facts about me!


1. I am tube fed

2. My favourite colour is silver

3. Only the top part of my heart is working

4. I have a list of health problems long than this one ;)

5. I am obsessed with lipsticks

6. I have two gorgeous dogs who are my life

7. I have qualifications in health and social care

8. I hate being hot

9. I really hate rain and the feel of it on my skin

10. I've always lived in the same house since I was born

11. I love being by the sea

12. I can't drink alcohol :(

13. I love having long nails and always painting them

14. I have too much makeup and keep buying more

15. I am addicted to Yankee candles 

16. I am also addicted to pandora 

17. My favourite drink is Ribena 

18. I love wearing rings and bangles 

19. I live with my mum dad and brother 

20. I always have to have a fan on


Love and light 


Rosie xx  

Well where have I been... An update?

So it's been a long while since I've written a post and that's mainly due to my health deteriorating at a rapid pace. 

I'm currently led in bed with the sun shining through my window with my gorgeous little pooch Remy joining me by my side. I thought while I was having a quiet rest it was time I wrote a post and got back into the swing of things. 
Before my lack of posting I was doing a '30 day challenge' which I have continued with but not posted them so once I have finished this little update/moan/ramble I will post those and an updated version of my bucket list. 
I have come up with a goal which is that I would like to do a blog post twice a week  if I'm up to it and I'm always looking for ideas so if anyone has any suggestions I'd like to hear them! 


So I probably should update everything to do with my health and what's been going on.. 
Most of the people who know me on Facebook and other social media knew that last year I had an operation on my ankle - since then my health has taken a huge nose dive into even more crap than I was dealing with before. We think that the trauma of the operation and the general anaesthetic involved made my heart and other systems take a turn for the worst. I have been so weak, relying on a wheelchair to go anywhere, whereas before I would walk when I could most of the time, I feel awful after litterally a couple of minutes of any sort of activity, it being walking a few steps, having a bath etc. This has meant that I have felt so ill I haven't wanted to do as much because anything just makes me feel like I'm dying. 
I went back up to London earlier this year and had some more tests. The results from those tests diagnosed me with another couple of horrible conditions. 
There's no treatment for my life limiting illnesses, they can only treat the symptoms such as giving pain relief, anti emetics and other meds for my heart, bowel, stomach and other organs & symptoms. 

I have been really struggling with feed and getting hydration so my dietician is currently thinking about other ways and contacting Drs and other people to try figure a way to get the fluids and such I need to try help me feel more 'alive'. The less fluid & feed i have the worse I will feel. Because my body Is just trying to burn energy I do not have. 



I think that's enough about my health, I'm sure there's loads I've missed but that's a *short!!!* update of what's going on! 

In other news I am getting a new wheelchair on Friday which I have been waiting for, for a lonnnng time! It is going to be so much more supportive and comfortable so hopefully I will be able to get out for longer periods of time and be more comfy than I am with my current one. It's really old and knackard - just like me!


Also some nice news is that my boyfriend is taking me away on a short break in June, to Weymouth and I'm really looking forward to it. It'll be even better with my new chair and I always feel better by the sea. So I can't wait for that! 

Some more lovely news is that my wonderful mum has made me a very special beautiful garden with the theme of by the seaside. I am going to do a seperate post about that but my gosh it's soo lovely! 


I think that will be it for this post, so thank you if you got this far..

Love and light 

Rosie xx